Thank you for visiting my Congenital Heart Walk personal fundraising page. Congenital Heart Disease if the most common birth defect in the US. It affects 1 in 100 babies born each year. CHD has affected our family not once but twice. This year, we are walking in honor of our much loved daughter Misty Kelley Sharpe and in memory of our beloved grandson Drew Kelley. Please consider joining our team as a walker or making a tax deductible contribution to support CHD research. Here is a little info on our "Special Hearts".
Misty Nicole Kelley was born on June 16, 1987 and within days, she was critically ill with a diagnosis of coarctation of the aorta with atrial and ventricular septal defects. Her first surgery came at 7 days old as she bravely fought heart failure. She was a fighter though and home we went with our "heart" baby. During that first year, Misty was a delightful, "normal" appearing baby who met all of her developmental milestones but her coarctation surgery needed to be done again at 13 months. During year next year, Misty developed aortic stenosis and a leaking heart valve so surgery 3 came at 23 months. Unfortunately, the surgery was not successful and Misty had her 4th surgery at age 4 and a half. It was a big and dangerous surgery. She was the youngest patient to have the procedure (Konno with Mechanical Aortic Valve Replacement) in Georgia. 29 days and many prayers and miracles later, we went home. 21 years later, we have been so blessed to be the parents of a wonderful daughter who has grown into a beautiful young woman of whom we are so proud. Misty is now married to Logan Sharpe and lives in Nashville. She has a passion for CHD research as she continues to live with the challenges faced by adults with heart disease. CHD kids are never cured but thanks to medical advances and research, many heart kids are now living full lives as adults.
Charles Andrew "Drew" Kelley was born on February 9, 1993, the beloved son of Michelle Kelley, much loved grandson of Malcom (Angela) Kelley and Tena (Charlie) Underwood and the awesome nephew of Aunt Kim "Kimmy" and Aunt Misty. Drew was diagnosed with Truncus Arteriosus shortly after birth. He has his first surgery to place a conduit to reroute the circulation in his heart as an infant. Just before age 5, came surgery number two to replace the conduit and repair a leaky aortic valve. Two other surgeries including an infection in his heart came at age 16. In every way...except for being small (we called him "runt" sometimes), he was a normal toddler and boy. T-Ball, Cub Scouts, skateboards, drums, PlayStation, music and soccer filled his life. What defined his life though was the amazing way that he looked at life, how he handled adversity, how he always lived in the moment and never missed an opportunity to be a true friend. He was a young man working toward his goals but God had other plans for Drew. On the beautiful afternoon of November 10. 2013, he went to play soccer with friends and had a cardiac event on the field and went to his heavenly home. We were so honored and blessed to have him in our lives for twenty glorious years.
CHD research and programs are severly underfunded. In honor of Misty who is now an adult living with CHD and in memory of our beloved son, grandson and nephew who lived courageously with CHD, we thank you for taking the time to read about our personal mission to help in the fight against CHD. A donation of any amount would be very much appreciated. The easiest way to make a contribution is through the website. We would also love to have as many family and friends walk with us on June 30th in Nashville! Please check the website or contact me if you have any questions. Thanks for your support! Sincerely, Angela Kelley