2018 Greater Philadelphia

Justin Ryder

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Justin Ryder Wysocki was born on Tuesday, May 17th 2011 at 11 o'clock in the morning. He weighed 7 pounds, 12 ounces... and measured 19 and 1/2 inches. He looked absolutely perfect.  We were shocked to learn that he was born with a congenital heart defect called Total Anomalous Pulmonary Venous Return or TAPVR. What that means is that none of the four veins that take blood from the lungs to the heart are attached to the left atrium of the heart. The cause is unknown.

In normal circulation, blood is sent from the right ventricle to pick up oxygen in the lungs. It then returns through the pulmonary veins to the left side of the heart, which sends blood out through the aorta, and around the body.

In TAPVR, oxygenated blood returns from the lungs back to the right atrium or a vein flowing into the right atrium and NOT to the left side of heart. In other words, blood simply circles to and from the lungs and never gets out to the body.

Almost immediately after he was born, Justin was transferred from Abington Hospital to St. Christopher's Hospital for Children. He had a surgical procedure done to have a machine called an ECMO (or heart-lung machine) clean, oxygenate, and circulate his blood for him. He reacted positively to the treatment, which enabled him to prepare for open-heart surgery.

On May 19th, a 7 hour procedure was performed where the pulmonary veins were rerouted. Justin did great throughout the surgery and was taken off the ECMO machine.

The following 6 weeks were filled with many ups and downs.  He remained at St. Christopher's until his struggle ended and sadly, he passed away.

Although the doctors were able to repair his heart, he had to fight many infections. Ultimately, his little body was not strong enough to win the battle... and because his lungs were compromised from the trauma he experienced before he was put on ECMO, he was never able to breathe on his own.

We don't want anyone to have to go through the heartache and loss we endured with Justin's passing. 

Thank you for your support!

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