2018 Houston

Miss Murphy!
Miss Murphy!

Murphy's Marchers

Thank you for visiting our Congenital Heart Walk team fundraising page. The Children’s Heart Foundation’s Congenital Heart Walk in Houston is this month, which is part of why we’ve decided to share Murphy’s journey now as we begin to get involved and invite you to join us. We have created this team to walk in her honor called Murphy’s Marchers. We are grateful you have visited this page and read about Murphy and hope that you'll join us at this year's Congenital Heart Walk on October 20th at the Memorial Park Conservancy. Please use the button on this page to join our team and/or make any donations to help Murphy's Marchers reach our fundraising goal.  You'll directly receive additional information after you've completed registration.  Thanks for the love and support. We wouldn’t be ok right now without our friends, families, and entire support system!!!!

Murphy's Story:

At Murphy’s four month well check appointment, her pediatrician heard an alarming heart murmur. The following morning we saw a cardiologist who diagnosed Murph with Congenital Heart Disease, specifically an Atrial Septal Defect, which is common in infants and definitely treatable, sometimes even healing itself (for the lucky ones!) She has three holes in the wall between her two upper chambers, one measuring 8.5mm the other two 3mm each. She has seen multiple cardiologists now and after ruling out some less invasive procedures as options we have accepted that she will eventually have open heart surgery. We don’t have any definite answers we are very unclear as a timeline but we are staying on top of her progress and will do whatever her team of doctors suggest is best for her. What we do know is that we are incredibly blessed to live in Houston and going to the #1 ranked Pediatric Cardiology and Heart Surgery Hospital in the country and luckily able to see a highly sought after, internationally known pediatric cardiologist who is the director of the non-invasive cardiac imaging at Texas Children's Hospital and is also the director of fetal cardiology at the Texas Children's Hospital Pavilion for Women. I share all of that to remind myself that Murphy could not be in better hands and we are confident that she is going to be just fine and live a long, healthy, perfectly normal life.  She is currently battling through another bout of Pericarditis because an infection spread to her heart and caused inflammation that we are fighting with medicine. She has seen a cardiologist weekly lately and we are developing our plan of action based on what will be best for Murphy in the long run. It has been a tough four months (literally half of her life now) for our little family but we've realized this is our reality and we are ready to take on the challenge.  Luckily for us, Murphy is the strongest, most courageous, happiest little girl and despite the discomfort we know she is experiencing she remains all smiles. She doesn’t let the x-rays, blood tests, EKGs, or echocardiograms slow her down! Thank goodness for her attitude- she is definitely handling all of this better than her mother!!!!

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